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"What's going to happen after I'm gone?": Parent Perspectives on Technology in Supporting Independent Living for Adults with Intellectual Disabilities

arXiv · AI, language, vision and robotics · article · Sep 16, 2026 · UTC

Adults with intellectual and developmental disabilities (IDD) are increasingly transitioning from family homes towards semi-inde\-pendent living. As parents hand off the role of primary caregiver, they face numerous challenges in arranging consistent and quality support. Our research centers on understanding these caregiving routines. By focusing on the unique lived experience of parents, who possess extensive explicit and tacit knowledge of their adult child's requirements, we aim to map the management of care they provide. This foundational understanding is essential to identifying how assis

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